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Why do you hate having epilepsy?

Post: #1
07-09-2013, 03:23 AM
member40723 Offline
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Why do you hate having epilepsy?

I do. I was unaware how much I hated it until I went to a gyno for what I thought was premature menopause. The seizure pills I take are known to cause. I started balling the doctor's office saying how much I hate being diagnosed as an epileptic.

It's the pills I hate more than the seizures themselves.



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Post: #2
08-02-2013, 11:24 PM
member43868 Offline
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RE: Why do you hate having epilepsy?

Yes, yes, yes! I absolutely hate it. The medication is the worst part for me also, and people really don't recognize how epilepsy is so life altering for women specifically. My pills make me feel like a zombie and make me sleep all the time. Sure I am not having seizures but I am not having much of a life either. Other pills, Keppra, gave me rage issues. My own husband even hates my epilepsy, he says it is worst than cancer. Of course, it hurts my feelings when he says that, which makes me hate it even more.



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Post: #3
02-18-2014, 11:32 AM
member25560 Offline
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RE: Why do you hate having epilepsy?

I hate the seizures, both me and my sister suffer from epilepsy. I also suffer from diabetes so sometimes its really hard trying to control both illnesses. My husband is very supportive and even makes sure I stick to a healthy diet. The pills on top of the insulin is a nightmare at times, but I try to just get on with it for my daughters sake.



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Post: #4
03-12-2015, 06:30 PM
member21235 Offline
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Why do you hate having epilepsy?

(07-09-2013 03:23 AM)ladybugger Wrote:  

I do. I was unaware how much I hated it until I went to a gyno for what I thought was premature menopause. The seizure pills I take are known to cause. I started balling the doctor's office saying how much I hate being diagnosed as an epileptic.

It's the pills I hate more than the seizures themselves.


I'm so sorry to read this. I don't have Epilepsy but it does run in my family on my mother's side. I hate watching my relatives go through seizures and they hate it as well. You are so right about the pills. Sometimes I wonder do the pills really help at all. I even notice my cousin seem a little lifeless or like a zombie at times. I don't like pills where your brain can be effected and change your mood.







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Post: #5
05-06-2016, 11:10 PM
member56324 Offline
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RE: Why do you hate having epilepsy?

I am certainly not a fan. My seizures aren't controlled by medicine and so I can't drive. I miss having that freedom, but I got into a nasty car accident so it isn't worth taking any risks. I recently had surgery to help control them. I have only had three since, which is a reduction, but I was hoping the surgery would stop them all together.

Epilepsy can be a pain, but whatever doesn't kill us makes us stronger. Cheesy, I know. All I can recommend is staying positive! One day there will be a cure, science is getting closer.



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Post: #6
07-13-2017, 06:33 AM
member39187 Offline
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RE: Why do you hate having epilepsy?

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