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RA and blood clots

Post: #1
06-21-2012, 02:56 PM
member96987 Offline
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RA and blood clots

Hello, I would like to find out if blood clots (thrombosis) are something that people with RA can get regularly? In the last three months, I have spent two full days in the hospital because of clots. Both happened in my left hand but in different places. I have never had clots before but let me tell you, they are extremely painful. Imagine a blood vessel the diameter of a pencil expanding to the size of the nickel. I couldn't sleep and when I went in, the doctors decided to monitor me because they didn't want the clots blocking any blood flow in my fingers. What surprised me was that they said these clots aren't dangerous for having a stroke because they aren't likely to make it back to the heart. That was reassuring at least.




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Post: #2
06-22-2012, 09:39 PM
member8626 Offline
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RE: RA and blood clots

I have varicose veins and they are quite painful too, but I have never heard that clots are tied to RA. Of course with the medications we take, it is entirely possible. The overactive immune system could also cause this to happen. Because of the pain I was having, they dissolved one of the veins in my leg. I have another one that may soon need the same treatment. I haven't had any significant pain from it so far, but it is starting to stretch a bit.




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Post: #3
06-23-2012, 02:54 PM
member96987 Offline
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RE: RA and blood clots

I had not considered the medications but that seems a possible cause too. These are powerful medications. I am not sure it is in my case because I have not changed medications for a few years. You never know how the body reacts to these drugs.




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Post: #4
06-24-2012, 11:37 AM
member97392 Offline
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RE: RA and blood clots

Hello, there is actually evidence supporting blood clot problems for those of us with autoimmune problems. I went searching a found this medical journal article that I had read about last year. It is at the following location:

http://www.biomedcentral.com/1741-7015/9/1

From what I understand, having Lupus increases the clot risk four times but having RA still increases it by 70%. The people who wrote the study thinks it is because of the constant inflammation. The study was looking more at surgery risks but if it can happen in surgery it can happen elsewhere in my opinion.




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Post: #5
06-26-2012, 02:35 PM
member96987 Offline
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RE: RA and blood clots

Wow, thanks for the information. That is a bit scary. I will pass the information to my rheumy the next time I see her. If I am getting these, I may need some blood thinners or something.




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Post: #6
06-27-2012, 10:58 PM
member8626 Offline
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RE: RA and blood clots

That is news for me too. I am going to be thinking twice if I need surgery. I don't want to die of an embolism in my lung.




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Post: #7
06-28-2012, 12:19 PM
member97392 Offline
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RE: RA and blood clots

I think that it is just more information for our doctors to help manage our RA more effectively. Many people needing surgery are at risk of blood clots so this will just help set the right amount of blood thinners to use.




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Post: #8
07-02-2012, 12:34 PM
member81269 Offline
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RE: RA and blood clots

(06-24-2012 11:37 AM)annmagic Wrote:  Hello, there is actually evidence supporting blood clot problems for those of us with autoimmune problems. I went searching a found this medical journal article that I had read about last year. It is at the following location:

http://www.biomedcentral.com/1741-7015/9/1

From what I understand, having Lupus increases the clot risk four times but having RA still increases it by 70%. The people who wrote the study thinks it is because of the constant inflammation. The study was looking more at surgery risks but if it can happen in surgery it can happen elsewhere in my opinion.

I have circulation problems due to Lupus, and they have manifested in my lower legs for the last 6 months or so. My doctor advised me to rest with the affected limbs elevated, and not to sit or stand still for long periods of time, to minimise the swelling, and the risk of clot formation.

It's not something I ever associated with my condition - I have both Lupus and RA - but it's not as scary as it sounds, as long as you follow medical advice. My doctor recommended I follow an anti-inflammatory diet and take fish oil supplements bwecause I also have more or less permanent inflammation on the lungs. It's taken a couple of months, but there seem to be improvements in both my circulation and my breathing, so it may be useful for others to try.







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