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Post: #1
03-13-2012, 09:08 PM
member55595 Offline


Hi! I finally found a decent place to share my condition and the extreme anger I feel that accompanies it. Let me start by saying that 2 years ago I was embracing a finally realized dream and working towards getting my book published. I was even flown to Japan by a publishing company to interview and research artists for cover art for my graphic novel.

In the summer of 2010, I was involved in a hit and run accident. I was t-boned my a drunk driver ( who was later caught and charged ) and left on the side of the road. I sustained serious head trauma, swelling in the frontal lobe, which went unchecked, missed by my doctors. It developed into an intracranial hemmorrhage, which was only discovered a month later when I collapsed at work in grand mal seizure.

I am now the lucky recipient of a seizure disorder that will affect me for the rest of my life. In addition to an expensive prescription of Dilantin that i must now take twice a day, I can't write as I once did, as staring at the PC screen for long periods of time now leave with my crippling headaches.

I'm trying hard to move past this affliction as I still have things I want from life ( Im only 29 ) and I'm mommy to 3 gorgeous girls ( yes, pity me! lol ) and they need me as much I as I still need my identity as a writer. So, here's hoping to making and developing new friends and relationships

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Post: #2
06-16-2012, 03:12 AM
member68406 Offline

RE: Introduction

Hello and welcome. I am so sorry to hear about your accident. Do you HAVE to stay on Dilantin or do you have other options? I was on Dilantin for 12 years. It did well for my seizures but the side effects were terrible! I have been on Lamictal for 9 years now and am doing much better in terms of side effects.

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Post: #3
06-30-2013, 11:48 PM
member45042 Offline

RE: Introduction

I was accosted once and I attribute the seizures to that, though their may be other contributing factors. I got to the point of almost $90k in medical debt, so I know how you feel!

I would explore medicinal marijuana if it is legal in your state. I am on dilantin, and HATE the side effects. I am saving up for an appointment at a marijuana clinic where there are retired neurologists to work with, and hopefully ween me off dilantin.

I tried depakote and constantly vomited. I got what is known as the "lamictal rash". Lamictal is good for some, but in extreme cases can cause Stevens-Johnson's syndrome, which can be fatal.

The saddest/scariest thing I was told by my doctor was that they develop epilepsy meds by injecting cocaine into monkeys for 72 hours straight and causing the condition in them. It sickens me.

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Post: #4
08-02-2013, 11:56 PM
member55066 Offline

RE: Introduction

I have my epilepsy from a head injury also. The worst part about it is that I don't remember the injury at all, and my spine is messed up also. I have been on Dilantin and I hate it. I have also tried Depakote which did nothing, Lamictal which did nothing, and Keppra which didn't work well and gave me rage issues. It is very difficult finding the right medication.

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