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How is Lupus diagnosed? - Printable Version

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How is Lupus diagnosed? - member48297  - 09-18-2012 03:22 PM

Are there any distinctive symptoms to Lupus that a person should look out for? Also, how is it diagnosed, I know that some of you say that that its not easy to diagnose but i wanted to know is there any way that its found in the body. I have a family member who suspects they have Lupus but they haven't actually been diagnosed with the condition at this time. I'm not a fan of self diagnosing but they were told this by a doctor that it was a possibility but it wasn't actually determined.


RE: How is Lupus diagnosed? - member97987  - 09-19-2012 08:38 PM

One of the things that makes Lupus so difficult to diagnose is that it mimics other conditions. About the only symptom that is specific to the disease is the butterfly rash that appears across the nose and cheeks. Hair loss is another Lupus symptom, but it can also be a symptom of other conditions. If you have the two symptoms together, it's likely that you do have Lupus. That was how I was finally diagnosed, but it took around two years to get to that stage. Keep heading back to the doctor until you get a firm diagnosis.



RE: How is Lupus diagnosed? - member44769  - 09-21-2012 12:06 AM

As Sandra said, lupus is one of those that's hard to diagnose because it shares symptoms with so many other diseases.

Have you ever seen House? They often poke fun at this because House will come to this brilliant diagnosis that it must be lupus.... but of course, it's never lupus. It's always something else.


RE: How is Lupus diagnosed? - member48297  - 11-03-2012 03:38 PM

Thank you for your responses. Well, I know for a fact that my sister hasn't had these sort of rashes or hair loss. I have told her that I suspect RA more then Lupus. Our father had RA and even though it doesn't show up in her blood work just yet, I have researched it enough to know that in its early stages in won't appear in blood work. Some of her symptoms are just as similar to RA as well.


RE: How is Lupus diagnosed? - member65547  - 07-16-2014 01:22 AM

(09-19-2012 08:38 PM)SandraPiddock Wrote:  One of the things that makes Lupus so difficult to diagnose is that it mimics other conditions. About the only symptom that is specific to the disease is the butterfly rash that appears across the nose and cheeks. Hair loss is another Lupus symptom, but it can also be a symptom of other conditions. If you have the two symptoms together, it's likely that you do have Lupus. That was how I was finally diagnosed, but it took around two years to get to that stage. Keep heading back to the doctor until you get a firm diagnosis.


Thank you SandraPiddock!
You are correct, "... Lupus so difficult to diagnose is that it mimics other conditions." Lupus is an autoimmune disease. My mom died due to complications of systemic lupus. My aunt, cousins, and I were tested for the antibodies. Strangely enough, My aunt and one cousin have diabetes. My cousin and I have been diagnosed with Graves disease which affects the thyroid. It wasn't until after my mom was in hospice, had we all discovered those diseases were all autoimmune diseases. Additionally, autoimmune diseases run in families.
Years and years went by when we thought my mom had RA, Rheumatoid Arthritis, but instead her gnarled joints were a manifestation of Lupus. Yet, she was treated with the same medications any RA patient would receive.


RE: How is Lupus diagnosed? - member84690  - 08-31-2015 11:23 AM

(07-16-2014 01:22 AM)Allison2021 Wrote:  
(09-19-2012 08:38 PM)SandraPiddock Wrote:  One of the things that makes Lupus so difficult to diagnose is that it mimics other conditions. About the only symptom that is specific to the disease is the butterfly rash that appears across the nose and cheeks. Hair loss is another Lupus symptom, but it can also be a symptom of other conditions. If you have the two symptoms together, it's likely that you do have Lupus. That was how I was finally diagnosed, but it took around two years to get to that stage. Keep heading back to the doctor until you get a firm diagnosis.



Thank you SandraPiddock!
You are correct, "... Lupus so difficult to diagnose is that it mimics other conditions." Lupus is an autoimmune disease. My mom died due to complications of systemic lupus. My aunt, cousins, and I were tested for the antibodies. Strangely enough, My aunt and one cousin have diabetes. My cousin and I have been diagnosed with Graves disease which affects the thyroid. It wasn't until after my mom was in hospice, had we all discovered those diseases were all autoimmune diseases. Additionally, autoimmune diseases run in families.
Years and years went by when we thought my mom had RA, Rheumatoid Arthritis, but instead her gnarled joints were a manifestation of Lupus. Yet, she was treated with the same medications any RA patient would receive.


my dighter had a strange lesion on her leg, all types of medication were tried. Blood showed elevated ssa . Doctor believes it may be lupus, but they told her she has to wait for more symptons for a more exact diagnosis. The waiting is awful!


RE: How is Lupus diagnosed? - member90436  - 11-02-2017 05:39 AM

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RE: How is Lupus diagnosed? - member36442  - 11-02-2017 10:28 AM

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